Sunday, November 30, 2008

Dear Family & Friends,
We’re writing regarding a very important matter: RSV. For those of you who
plan to visit us over the next few months, and even if you are not, please take
a few minutes to read this letter.
We want to start by saying thank you for the outpouring of support we have
received from everyone. So many people have done so much for us, and
every bit of help we have received truly is appreciated. We are experiencing
the biggest challenge of our lives, and we’re lucky to be surrounded by so
many family members and friends who have shown us so much love and support.

We’d also like to share an important topic that we recently discussed with our babies’ pediatrician.
If you are not aware of RSV, respiratory syncytial virus, you are among the majority. Most people have not heard of RSV, even though nearly every child has had the virus by age two. For full-term babies, RSV typically is not any worse than a
common cold, but for preemies, the virus can be quite different. Babies born earlier than 36 weeks are at the highest risk for serious complications like pneumonia, bronchiolitis, and other sometimes fatal complications.
Our babies were born premature, are multiples, and had low birth weights; these are among the highest risk factors for contracting RSV and developing serious complications.

This website offers a great visual comparison of a
preemie’s lungs compared to the lungs of a full-term baby: http://www.preemiecare.org/LungsTrees03-4.pdf

Preventing the spread of RSV is very difficult. Thus, we must be vigilant about keeping our children safe during RSV season (October through April). The virus is spread through physical contact, in the air via a cough or sneeze, or by touching an infected object. The virus can live as long as six hours on hands and up to twelve hours on objects, and it spreads very easily, especially from child to child. Studies have also shown that infants pose an even higher risk of spreading RSV to others.

You may ask, “Can’t they fight it off and build up their immune system? Kids need to get sick, right?” The simple answer is NO. Since our babies were pre-term, they did not acquire the necessary immunities to fight off infection.
If they contract RSV, they could be hospitalized and develop serious complications.


We’ll be asking our visitors to follow a few guidelines to help prevent the babies from contracting RSV or any other illness.


We ask that all visitors do the following:


1. When you arrive, please wash your hands and use hand-sanitizer as needed before touching the babies. You will find this throughout our house.
2. Please, if it is possible, get a flu shot. Children included ours have done so also.
3. Please refrain from coming over if you are currently sick and have not been symptom-free for at least 5 days, if you live with someone who is sick, or have been in close contact with someone who is sick.
4. If you smoke, we ask that you change your clothing and refrain from smoking prior to visiting, as a preemie’s lungs are very sensitive to smoke. Most RSV sites recommend against passive smoke exposure.
5. If you are parents to a baby or toddler, please refrain from bringing them to our house during RSV season.

Unfortunately we will not be attending many events during RSV season. Our goal is to make it through this and
the next RSV seasons without the babies contracting RSV or any other serious illness.

Their lungs are still very fragile until they are 2-years-old.
Please understand that this letter is not meant to offend anyone, just simply to provide an explanation. We hope you understand, and we appreciate your help keeping our babies safe.
We are also providing several resources with additional information about RSV below.
http://www.preemiecare.org/rsv_resourceshtm.htm
http://www.preemiecare.org/rsvfaq.htm
http://www.preemiecare.org/rsv2.htm
http://www.mostonline.org/preemieBB/viewforum.php?f=82
Love and best wishes to all!
Joe, Kim
Brittni, Colin, Elizabeth, Carmina & Gabriella

8 comments:

The Schauble Family said...

My twins that were born at 33 weeks contracted RSV the month before they were 2. Along with their older sister who was 3. It was not fun. Has your pediatrician looked in the RSV vaccine for your girls? My friends preemies got them because they were 31 weekers. I hope all is well with your family and you all are adjusting. My twins just celebrated their 4th birthday. As you know time flies. God Bless and I will keep your family in my prayers.

themrs said...

this is really good advice to have for your visitors. don't worry about offending people, you're protecting your babies. when i was in the hospital with my first (full term) someone tried to visit me who still had a rash from scarlet fever! thankfully, one of the nurses at the nurses station saw it before they got to my room and made them leave. sometimes people just don't think! i am praying for good health all season long for you and all your little ones!

cheeky chums said...

Unless people know about what premature babies are prone to even a year after they will be left in the dark congratulations on delivering 3 little miracles, Love to see a picture on your home page of your little darlings from sheila at the premature baby store www.cheekychumsonline.co.uk

Elaine said...

I think you are giving people very good advice. RSV can be very deadly and make a child very sick. My son contracted RSV a few times when he was very young and spent time in the hospital ranging from a couple days to 7 days. He wasn't a preemie, but rather 1 week overdue. I saw what effect it had on him and can only imagine what effect it would have on a preemie. I will pray for your family and that visitors respect your wishes and use what should be common sense. Your babies are adorable.
Elaine from MT

Anonymous said...

Dear Mom and Dad, family...thank you for taking such good care of us, we ARE a handful to say the least.
Chances are, soooo many people love us, pray for us, and look forward to watching us grow up healthy, they wont be offended by asking our village to help keep us safe. Shucks mom and dad, if most people really, really, really, love us, they might even just "look" and adore from a distance and NOT touch, just to be on the safe side, but hey, we're babies, we dont know much yet.
Dont fret mom and dad, the three of us ARE GOING TO BE SWELL! We will have to get used to people always looking at us anyway, we are beautiful. Love you much!
Love "The wonder babies!" :)

kc mom said...

People seem to get so excited over the thoughts of coming to visit you they don't stop to think of the health concerns. I think you are being a completely responsible parent by posting this and asking friends and family to be aware of the risks.
Wishing you and your family continued health and happiness!!!

Michelle said...

Good for you! My son actually got RSV at 5 months and I still wonder how that happened. He was very sick for about a month and we had a few scary moments... but he did okay after all. I firmly believe that if you keep them in and keep out what you can they will be better off. It can come on so suddenly and before you know it they are sick. Never apologize for being a protective parent.. that's our job... Congrats!

Evan's Mom said...

My son had this and it was horrible...luckily he didn't even know he was sick...it all started with a fever of 103-105 that wouldn't break and lasted 2 days, he had 1 seizure during this time (during a luke warm bath to drop his temp)...I have also heard that this virus is how Marlie Matlin (The actress) became deaf...I knwo the fear you must face...it is dangerous for all children, and I am sure preemies even more so...the prolonged fever is the scariest part, every parent I spoke w/ was like "yeah, I guess they did have that I forgot"...I couldn't believe I had never heard of this virus...I will NEVER forget how very scared I was...here are some pics of my son when the rash hit: http://evanpoet.zoomshare.com/1.shtml/ccb47d52640a0badf4670b62b15f5451_483d70ef.writeback